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He had me at the assertion, “I believe that overall health data is drugs.”

Those were being the terms of Ardy Arianpour, CEO and Co-Founder of Seqster, when sharing with me how his corporation was established.

We met up past 7 days at the DIA Europe 2022 meeting (Drug Information Association) in the neat Square Convention Center in Brussels, Belgium (my recent household base for operate and lifetime). It was a uncommon possibility to sit however with this on-the-go man with whom an hour invested is the equivalent of 3 several hours with most other people.

Ardy and the team simply call Seqster “the functioning method for health treatment,” a trademarked phrase.

Turbocharging, truly inspiring that daring statement is the really like of a son for his parents coupled with tech-innovation chops that could, in fact, inevitably provide that audacious claim of currently being health care’s OS to fruition.

Initially, contemplate: the absence of interoperability among health information, resulting in silos, has plagued our capacity to “operate” (that “O” in “OS”) in a easy vogue across the treatment continuum, from scientific trials and study to patients’ self-care driving optimal outcomes.

Our desire for facts liquidity has eluded us throughout the health and fitness/care ecosystem for much too long, notwithstanding American taxpayers’ $35 bn financial investment in EHRs courting to the American Restoration and Reinvestment Act of 2009 that embedded the HITECH Act funding EHR adoption for hospitals and health practitioner practices.

Second, increase into the mix: Ardy’s mother and father are each most cancers survivors and as he describes himself, he’s the “poster child” for household overall health difficulties. His private DNA led him to his career journey and love of genetics.

Just after effective stints performing in genetics for nearly 20 yrs, Ardy co-launched Seqster with companions Xiang (Sean) Li and Dana Hosseini, fellow genomics veterans, and the trio hunkered down to de-fragment the very fragmented, siloed health and fitness information ecosystem – emanating from big-iron shut EHRs to pharmacy claims, lab info, wearable products, digital imaging, DNA/ancestry info, and remote affected individual checking equipment.

The crew did the heads-down difficult perform constructing out the skill to get the information from hither, thither, and yon in actual-time, enabling researchers, suppliers, and diagnosticians to look at a longitudinal well being profile of a affected person: a comprehensive, 360-degrees look at of the entire human being. Which is why Seqster phone calls this solution “patient-centric interoperability.”

Now, let’s ponder just one individual client whose title is Eric Topol, MD. You should know him for his work main Scripps Study Translational Institute along with his should-study textbooks, The Client Will See You Now, Deep drugs, and The Creative Destruction of Medication. He also tweets his possess remarks on Twitter @EricTopol, which have become should-click insights into the COVID-19 pandemic from the inception of the community health disaster.

With that context, here’s some actual-globe evidence to consider: Dr. Topol’s knowledge with Seqster early in the company’s heritage led him to tweet the pursuing on 21 August 2018, exhibiting the precise tweet screenshot listed here:

“1st time I have been ready to get my medical data from 1985>present 4 health devices @ScrippsHealth @UCSDHealth @ClevelandClinic @umichmedicine + @23andme + @fitbit + @MyFitnessPal with labs from diff’t methods all linked @seqster (trying it <254 hrs). step in the right direction”

CBS News 8 San Diego covered a caregiver and cancer patient’s experience with a live shot of their thick binder, containing CDs with medical images and data from these various provider institutions laying on top of a pile of letters and lab test results.

The basic (well, not-so-basic) operating system starts with the electronic health record (EHR), accessing data for the patient: allergies, conditions, immunizations, labs, meds, procedures, vitals, in real-time and in a continuous longitudinal timeline.

For wonky-tech readers, this involves using Seqster’s proprietary technology (FHIR+) to enable the flow of patient information from once-siloed data locked into legacy systems and wearable tech clouds.

Seqster’s March 14th press release, Seqster Launches Developer Portal Delivering Longitudinal Health Data and Patient Engagement Directly Into Life Science Enterprise Workflows, announced the company’s developer portal that automates patient data across their health journey — from pre-diagnosis, diagnosis and treatment, to study participation — as well as continuous long-term monitoring for outcomes research and ongoing observation.

This capability is attracting pharmaceutical and life science companies, health care providers and research organizations to take a closer look at Seqster’s offering.

UBC is among the organizations partnering with Seqster to enable patient engagement and interoperability. UBC is evolving from site-based clinical trial research to decentralized clinical trials (DCTs). This will enable UBC to modernize study designs, “capitalizing on patient mediated medical record release,” Aaron Berger, Executive Director, RWE, of UBC explained in the project’s press release. Aaron called this “a game-changer for our clients,” who are pharmaceutical, biotech and other life science innovators.  Note that UBC’s tagline is “Patients first, powered by evidence.””

In summing up the patient-centered interoperability goal, Ardy summarized: “We’ve created the of health data.”

Health Populi’s Hot Points:  Many of my beloved and brilliant colleagues are convening this week at HealthDataPalooza and the National Health Policy Conference in Washington, DC.

They are brainstorming how to solve the challenges of health equity, interoperability, patient engagement, and digital literacy, among other barriers to making health care better for all health citizens. Among those informing discussions at the meeting are representatives from ONC, who will be discussing the latest 21st Century Cures Act interoperability and patient access guidelines — which Seqster embraces in their operating system.

One quiet theme I teased out of the Twitter-conversation during the meeting is the concept of data colonialism — explained here in a just-published essay in the Stanford Social Innovation Review.

“All too often, social sector practitioners, including researchers, extract data from individuals…for their own purposes, and do not even make it available to them, let alone enable them to draw their own conclusions from it. With data flows the power to make informed decisions….If we are truly committed to decolonizing the practices in aid, then we must also examine the ownership and flow of data.”

From the SSIR explanation, I highlight key phrases for making health data flows more inclusive and impactful:

“Data is not a finite resource in the social impact sector, yet that is how we operate. We believe it is this reflexive tendency, rather than an insidious intent to keep communities down, that underpins data colonialism today. Sharing data would accelerate shared impact by aligning incentives and highlighting solutions that truly work. The sharing of aggregated and anonymized data sets can bring clarity to complex environments based on shared insights to work toward continuous improvement to existing systems.”

Seqster is working to solve this very barrier to peoples’ optimal health and, ultimately, their life expectancy as we are faced with tough diagnoses. Ardy and team did so for his father one day, they may well do this for you or me. This is the promise of personalized medicine.